I don’t think my doctor was bad. I think she was doing her job the way she’s supposed to and that’s kind of the reason why asking her about this issue wasn’t useful and it’s better to discuss these kind of questions with chatbots.
Going in I had a some hope given that NAC, glycine and glutathione are are all textbook substances. Genetic glutathione-synthesis disorders causing recurrent infections is something that mainstream medicine does recognize. Glutathione being important and not some weird body work intervention (of the kind that I think increased my collagen turnover and created the increased glycine usage that left less for glutathione) that interacts with pathways that aren’t in the textbooks.
Your situation sound a bit similar to my adopted son’s situation with G6PD. One of the things I’ve just learned is how non-uniform that condition is. He’s in the Philippines and they actually screen all new born children for it now. No actual treatments for his situation is available. But since frequency of occurrence in much higher in the Philippines than many other places in the world the Philippine medical infrastructure if pretty much on par with any 1st world county for this condition. And the current “treatment” is avoiding the triggers. If you talked with a Philippine doctor it is very likely they will know “current state” knowledge (maybe not cutting edge though). If I were to start asking doctors here in the USA (and I suspect it would be the same in EU) I suspect most will not really know much and possibly nothing at all.
So one thing to think about when “asking my doctor” is should I consider the question “mainstream” or “cutting edge/far tail of some distribution” and why should I think that.
I don’t think my doctor was bad. I think she was doing her job the way she’s supposed to and that’s kind of the reason why asking her about this issue wasn’t useful and it’s better to discuss these kind of questions with chatbots.
Going in I had a some hope given that NAC, glycine and glutathione are are all textbook substances. Genetic glutathione-synthesis disorders causing recurrent infections is something that mainstream medicine does recognize. Glutathione being important and not some weird body work intervention (of the kind that I think increased my collagen turnover and created the increased glycine usage that left less for glutathione) that interacts with pathways that aren’t in the textbooks.
Your situation sound a bit similar to my adopted son’s situation with G6PD. One of the things I’ve just learned is how non-uniform that condition is. He’s in the Philippines and they actually screen all new born children for it now. No actual treatments for his situation is available. But since frequency of occurrence in much higher in the Philippines than many other places in the world the Philippine medical infrastructure if pretty much on par with any 1st world county for this condition. And the current “treatment” is avoiding the triggers. If you talked with a Philippine doctor it is very likely they will know “current state” knowledge (maybe not cutting edge though). If I were to start asking doctors here in the USA (and I suspect it would be the same in EU) I suspect most will not really know much and possibly nothing at all.
So one thing to think about when “asking my doctor” is should I consider the question “mainstream” or “cutting edge/far tail of some distribution” and why should I think that.