The key thing I will never accept is giving parents agency over their kids’ genome.
Do you oppose the existing efforts to prevent Tay-Sachs disease?
In the first 30 years of testing, from 1969 through 1998, more than 1.3 million persons were tested, and 48,864 carriers were identified. In at-risk families, among couples where both husband and wife were carriers, more than 3000 pregnancies were monitored by amniocentesis or chorionic villus sampling. Out of 604 monitored pregnancies where there was a prenatal diagnosis of Tay–Sachs disease, 583 pregnancies were terminated. Of the 21 pregnancies that were not terminated, 20 of the infants went on to develop classic infantile Tay–Sachs disease, and the 21st case progressed later to adult-onset Tay–Sachs disease. In more than 2500 pregnancies, at-risk families were assured that their children would not be affected by Tay–Sachs disease.
yeah, as long as the parents only get a heal all rare genetic diseases button and there’s a chance for others to veto having those specific options available, so that if those genes determine their souls, they don’t get a chance to mess with them. I would want this constraint relaxed soon, but only for adults modifying themselves, so they’d have to live with the mod before getting to pass it on.
Do you oppose the existing efforts to prevent Tay-Sachs disease?
I’m a fan of this.
yeah, as long as the parents only get a heal all rare genetic diseases button and there’s a chance for others to veto having those specific options available, so that if those genes determine their souls, they don’t get a chance to mess with them. I would want this constraint relaxed soon, but only for adults modifying themselves, so they’d have to live with the mod before getting to pass it on.