I run a curated Discord for high agency people with Long COVID/ME (myalgic encephalomyelitis). The group includes tech founders, researchers, rationalists/EAs, etc. The focus is on troubleshooting each other’s conditions actively, as well as creating a body of knowledge to bring back to the wider community in the form of writing, education, projects, companies, etc.
Some know me as Liface, others as Liam Rosen—I have been in the Rationality community for over 10 years, previously in the Bay, now in New York City, and am the main moderator of r/slatestarcodex. I am a tech CEO whose former life abruptly ended last year. I am now bedbound with severe Long COVID/ME, and am dedicating 100% of my time and effort to helping myself and both everyone else around me figure out these complex conditions.
If you, or anyone you know might be a good fit for this group, feel free to message me here, or email me at liamrosen@gmail.com.
I am moderately interested in joining the Discord, at least just to see what has worked for others. I also got Long COVID ~1.5 years ago, and it’s rough.
Sorry to hear about your condition.. starting a community sounds good, I just emailed you. I went through a two year long Long COVID ordeal and now consider myself recovered. I’ve written several in-depth articles on Long COVID, and am working on a Long COVID dashboard (work in progress) to help make sense of all the trials conducted so far around the world.
Wishing you all the luck in the world, recovered from long covid this year after around 1.5 years of extreme suffering. Given the nature of the disease I’d suggest opening up the discord to others who do not have ME and have more energy to give, but not sure how to filter people who have genuine motivation to help. Quick note to everyone, covid is still around and still causing long covid, even if you don’t get long covid, it has deleterious effects on your body, best way to avoid this is wearing a well fitted respirator.
but… why not just share the group publicly so it is easier for people to join? You can have the verification within a channel in the discord server so unverified people cannot read other channels if you want. This seems like unnecessary friction.
Yeah, I realized this afterwards. I think I missed/read-and-forgot “high agency” in the original text. Whether it actually will be a good idea depends on how many people with long COVID will be reached
I run a curated Discord for high agency people with Long COVID/ME (myalgic encephalomyelitis). The group includes tech founders, researchers, rationalists/EAs, etc. The focus is on troubleshooting each other’s conditions actively, as well as creating a body of knowledge to bring back to the wider community in the form of writing, education, projects, companies, etc.
Some know me as Liface, others as Liam Rosen—I have been in the Rationality community for over 10 years, previously in the Bay, now in New York City, and am the main moderator of r/slatestarcodex. I am a tech CEO whose former life abruptly ended last year. I am now bedbound with severe Long COVID/ME, and am dedicating 100% of my time and effort to helping myself and both everyone else around me figure out these complex conditions.
If you, or anyone you know might be a good fit for this group, feel free to message me here, or email me at liamrosen@gmail.com.
I am moderately interested in joining the Discord, at least just to see what has worked for others. I also got Long COVID ~1.5 years ago, and it’s rough.
Sorry to hear about your condition.. starting a community sounds good, I just emailed you. I went through a two year long Long COVID ordeal and now consider myself recovered. I’ve written several in-depth articles on Long COVID, and am working on a Long COVID dashboard (work in progress) to help make sense of all the trials conducted so far around the world.
Wishing you all the luck in the world, recovered from long covid this year after around 1.5 years of extreme suffering. Given the nature of the disease I’d suggest opening up the discord to others who do not have ME and have more energy to give, but not sure how to filter people who have genuine motivation to help. Quick note to everyone, covid is still around and still causing long covid, even if you don’t get long covid, it has deleterious effects on your body, best way to avoid this is wearing a well fitted respirator.
Badass. I wish you the best of skill.
but… why not just share the group publicly so it is easier for people to join? You can have the verification within a channel in the discord server so unverified people cannot read other channels if you want. This seems like unnecessary friction.
If you want a curated high agency group of people, introducing a small amount of unnecessary friction sounds like a fantastic idea.
Yeah, I realized this afterwards. I think I missed/read-and-forgot “high agency” in the original text. Whether it actually will be a good idea depends on how many people with long COVID will be reached